Autoimmune Mom Supports BRI Mission
Near the end of her second pregnancy, Katie Cleary noticed pink dots all over her legs. Her doctor said they would go away, but when they became worse after her baby was born, she went to a dermatologist. She was diagnosed with pleva, a skin disease characterized by a recurrent red rash. Around the same time, Katie was diagnosed with Hashimoto’s disease, an autoimmune disease causing inflammation of the thyroid gland and then reactive hyperglycemia. She notes there is a genetic connection with others in her family who have autoimmune diseases, mainly type 1 diabetes.
As she grappled with her diseases and extreme fatigue while trying to be a good mom, she turned to the internet for more information. “I couldn’t find the information I wanted online and thought that other people must have the same problem,” Katie says. Since she and her husband have website expertise, Katie had the idea to publish the website AutoimmuneMom.com along with a Facebook page of the same name.
“Our goal is to provide part information and part community support for moms and others that are struggling with autoimmune diseases,” she explains. “While there are websites providing information and support for one autoimmune disease, we discuss having several autoimmune diseases at the same time and also talk about rare autoimmune diseases.” People are grateful for the communication with the site, which has thousands of visits each week.
When Katie learned about Benaroya Research Institute at Virginia Mason (BRI) and its approach to studying the commonalities between autoimmune diseases to find causes and cures for all of them, she was excited. “I wanted to increase awareness of Autoimmune Mom and let people know about the good work BRI is doing.”
To get the word out, the Autoimmune Mom Facebook site donated $2,500 to BRI for “likes” received during a certain time period.
“We so much appreciate the efforts of Autoimmune Mom to support awareness of autoimmune diseases and our research,” says BRI Director Gerald Nepom, MD, PhD. “It is so difficult to be a mom with autoimmune diseases and we applaud these women for sharing their stories and support. We are all committed to work together to eliminate these diseases.”
“I hope that BRI can eventually make their research broadly available so people can be diagnosed quickly and diseases can even be prevented,” says Katie. “It’s important to fund autoimmunity research as an umbrella for treatments for all autoimmune diseases. I don’t want my children to suffer from them.”
Learn more about supporting BRI.
You Might Also Like
Innovation Fund Spotlight: New Tool Enables Scientists to Collect More Data From Rare Cells
Scientists know that cells of the immune system attack healthy tissue in autoimmune disease. But they don’t know exactly when those cells go awry, what drives them toward disease or if that process can be slowed or stopped to prevent disease. BRI has been instrumental in research that led to the first medicine to delay the onset of type 1 diabetes. Now, Peter Morawski, PhD, and Arpit Mishra, PhD, are building on that work and exploring early intervention in other autoimmune diseases.
Innovation Fund Spotlight: Finding the Precise Moment When Immune Cells Start Causing Disease
Autoimmune diseases happen when immune cells, which are supposed to protect you from germs, mistakenly attack healthy tissues. But what if we knew exactly which immune cells would attack – and when? Could we stop that attack before it starts? BRI’s John Ray, PhD, and Oliver Harrison, DPhil, are exploring exactly that.
How Does Wildfire Smoke Impact the Immune System?
As wildfire smoke becomes more common in the Pacific Northwest, BRI scientists are learning more about how it influences immune system function. We asked Dr. Megan Smithmyer about her research in this area and a new study examining the immune systems of wildland firefighters.
Immuno-what? Hear the latest from BRI
Keep up to date on our latest research, new clinical trials and exciting publications.